SickleSafe Foundation
Reducing sickle cell mortality and suffering. Completely free for the families we serve.
A family-centered nonprofit offering support, education, and community around the full sickle cell journey.
Nigerian SCD births a year
Under-five mortality without treatment
US patients with sickle cell
Service fees we charge families
Our programs
Support for the whole family
Active SCD Management
A free support program for families actively managing sickle cell disease, combining monitoring support, community health worker connection, education, and care navigation.
Post-VOC Recovery
A continuity program for families after a crisis, built to help them settle back into daily life with support and connection.
Post-Gene-Therapy Monitoring
Long-term family support for patients after advanced therapy, provided free to families and ethically separated from commercial partnerships.
Family and Caregiver Support
Education, peer connection, practical referrals, and family support for the people carrying daily care responsibilities.
CHW Training
Training for community health workers so local teams can hold the door open for families closer to home.
Patient and Family Education
Plain-language education for families in the languages and formats they can actually use.
From the families we serve
Stories will appear here with consent once programs are active. Until then, this space is held for families, children, caregivers, and those remembering someone they love.
Help us keep every service free.
Your gift helps us hold the door open for families facing sickle cell disease.